Consent design and participants consent

Design of consent

Fear of lower participation due to data-sharing clauses, particularly with certain data types (e.g., video data)
Challenge for data sharing practices
Unclear reaction to more recent types of “participant ID” (e.g., to match several data sets)
Would participants actually agree less?
Does participants’ understanding align with that of the researchers?

More general challenge: Evidence that participants often don’t read/understand consent forms
Evidence so far:
- Comprehension varies with reading level, interactivity
- Dialogue about data sharing increases consent
  may be challenging with larger sample size
  option for automated response?

Do participants understand informed consent forms in the same way researchers intend?
Does the information on sharing data (containing vs. not containing a section on data being shared) in the informed consent influence the participants’ willingness to participate? (for different data types?)
Does the option to clarify concerns about the informed consent make a difference in the willingness to participate?